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SLE Resources

The following resources are designed to provide SLE support and to help you, your team, and your SLE patients be prepared to meet the challenges of SLE.

 

Resources for you and your patients living with lupus

The Lupus Checklist

A worksheet designed to help patients record symptoms and other changes in their health.

Download The Lupus Checklist (PDF)

Lupus Action Plan

This worksheet includes a checklist to help your patients track their lupus flares and symptom severity, and select the actions that they plan to take.

Download English Version (PDF)

Download Spanish Version (PDF)

Lupus Impact TrackerTM

A worksheet designed to help your patients rate the impact of SLE on their health.

The Lupus Impact Tracker is a trademark of Rush University Medical Center and the Board of Trustees of the University of Illinois.

Download Lupus Impact Tracker (PDF)

How Lupus Affects Your Body

This worksheet can help your patients learn more about how lupus can affect various parts of the body. The worksheet includes space for patients to list concerns to share with their healthcare provider.

Download English Version (PDF)

Download Spanish Version (PDF)

How to Manage Stress

Living with lupus can be stressful. This worksheet includes suggestions to help your patients with lupus reduce their stress. Patients can place a checkmark next to the suggestions that they would like to try, then share their ideas with their healthcare provider.

Download English Version (PDF)

Download Spanish Version (PDF)

Lupus: Just the Facts

There are many myths about lupus. This worksheet presents facts to help dispel some of the common myths. Patients can place a checkmark next to the myths that concern them, then share these concerns with their healthcare provider.

Download Lupus: Just the Facts (PDF)

Living With Lupus

This worksheet can help your patients identify specific actions that may make living with lupus more manageable.

Download Living With Lupus (PDF)

 

Managing Your Lupus: How Can You Take a More Active Role?

This slide deck with speaker’s notes can help your patients understand SLE and the importance of taking an active role in managing their lupus.

Download Managing Your Lupus (PDF)

Resources from other Leading Lupus Organizations

We encourage you to visit these nonprofit lupus organizations working to raise awareness, improve diagnosis and treatment, and provide support to those living with lupus.

Lupus Research Alliance

The Lupus Research Alliance (LRA), formerly Alliance for Lupus Research, is an organization whose mission is to find better treatments and ultimately prevent and cure SLE through supporting medical research. By committing millions of dollars to significant lupus research every year and holding nationwide lupus walks to secure additional funding, the LRA is proactively battling lupus.

Visit the Lupus Research Alliance

National Resource Center on Lupus

This online collection of more than 600 medically-reviewed multimedia resources is intended to empower, educate, and connect all people affected by lupus, including patients, caregivers, healthcare professionals, and the public.

Created and vetted in consultation with lupus experts, the Center’s research updates, informational articles, and Q&As feature the latest thinking, backed by peer-reviewed science and interviews with medical professionals.

Visit the National Resource Center on Lupus

The Lupus Initiative

Learn more about a collaborative effort between the American College of Rheumatology and the Lupus Research Alliance to help educate frontline providers so they can better recognize lupus and refer to rheumatologists for diagnosis and treatment, and access resources to implement The Fellows Project in your institution.

Visit The Lupus Initiative

The Lupus Impact Tracker is a trademark of Rush University Medical Center and the Board of Trustees of the University of Illinois.